Muej Wisconsin Weekend in a Minute: The Ikea Family Kite Festival and Memorial Day remembrance ceremonies
MILWAUKEE 鈥?A local school dedicated its baseball field in honor of two children who died after being diagnosed with a rare disease.On Saturday, TMJ4 News was there as the University School of Milwaukee USM renamed its baseball field Bridger and Essex Grebe Field.Both passed away, in 2010 and 2015 respectively, after being diagnosed with Infantile Neuroaxonal Dystrophy INAD . INAD is a rare, inherited neurological disorder that causes progressive loss of vision, muscular control, and mental skills. When our sons were first diagnosed, we didn t know what it was, said Kelly Grebe.
stanley mugs Ryan Jenkins Michael and Kelly Grebe are the pa
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stanley cup Essex who both passed away from a rare disease before the age of 10. For the past 14 years, Michael and Kelly Grebe, the parents of Bridger and Essex, have been raising money to fund the search for a cure by hosting an annual charity softball tournament. To date, the family has raised nearly $800,000 to help fund the search for a cure for INAD, which affects roughly just 150 kids worldwide. The more people that we can make aware of this rare disease, the more hope we have of finding someone who wants to step up and fund a cure, said Kelly Grebe.While no cure has been identified yet, researchers are working towards starting gene therapy trials. That progress has inspired many who have joined the Gebe s on the quest for a cure.Watch: Milwaukee school honors local family after tragic loss Mird Comit茅 por el Voto Latino volunteers focus on reaching voters ahead of the election
WASHINGTON 鈥?The Associa
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